Holiday blinders

I love this time of year. For as long as I can remember, summertime is my time. After kicking off the season with Memorial day we have the fourth of July, my anniversary is a couple weeks later, my birthday a month after that and we close the season out with one last Labor Day bash. Friends, family, bbq’s, fireworks, beer, summer treats, deliciously warm summer weather- what more could you ask for?

Growing up the Fourth of July was always a big deal. We would do our own fireworks show, catch fireflies and grill burgers. One thing each celebration included was delicious desserts. Ice cream, pie, cake, cookies, brownies, candy; you name it, we had it. Then the delicious treats would continue into August where I inevitably spend a week celebrating my birthday with my favorite cake (German Chocolate), my favorite cookies (Snicker-doodles), my favorite frozen treat (mint chocolate chip ice cream) and my favorite candy (it’s a toss up between SweetTarts and See’s truffles). Enjoying dessert with type 1 diabetes can be a challenge. I never know exactly how many carbs to count for and most of the time simple sugars make me spike even when I do know and bolus correctly. Enjoying dessert with type 1 diabetes while pregnant is almost too risky to attempt.

While some people will advise to not deny yourself of something completely because you risk binging on it at some point, I have put on what I like to call my holiday blinders. If I wasn’t pregnant, I would absolutely treat myself. Sometimes a spike is worth it (I’m looking at you Eclaire cake!). But for the next few months, I am doing everything I can to keep baby boy Keller healthy. Than means, unfortunately, no Strawberry Sour Cream Cake for me (sounds weird, but I promise- delicious and refreshing!). I just can’t justify the spike because I almost always stay high for hours and that really freaks me out. This year I am putting on my blinders and settling for some measured strawberries with exactly 2 tablespoons of whipped cream, or carefully calculated treats only when my blood sugar is severely low (which isn’t happening much these days…).

My dessert sacrifice is 100% worth it. I’ve heard from other type 1 mama’s that once the baby is born blood sugars run extremely low, so I will happily hold off on my sweet summertime treats until September.

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Light at the end of the Tunnel

This week is officially the start of my third trimester. I cant wait for September to get here. Between insulin resistance, uncomfortable/sleepless nights, constant pee breaks and the summer heat, I’m more than ready to meet our little guy.

I keep reminding myself that I don’t have it as bad as some people do in terms of this balancing act: Type 1 diabetes and pregnancy. I had one pretty bad week of constant high blood sugars that left me feeling defeated and depressed. Everyday I worried whether or not my highs would result in high birth weight or delivery problems. Everybody told me that I was doing my best, but it didn’t feel good enough. After numerous daily texts and emails to and from my endocrinologist and my CDE and appointments with my OB and CDE, resistance has reverted back to an occasional spike here and there which I am completely ok with. I know that I’m only just starting the third trimester and will probably have more tough weeks ahead of me. As long as I keep checking in with my doctors, I will try not to stress.

Not stressing is the name of the game in terms of blood sugar management. As difficult as it is for me, I need to try to relax and rest as much as I can these last few months. I’m typically very go, go, go so this is easier said than done. My doctor hasn’t sentenced me to bed-rest yet (hopefully never!), but I find that when I take it easy my blood sugars cooperate. (Light, low-impact) Exercise also really helps. I’m still walking a few miles a day, some days more than others. I try and get a couple long walks in during the week, but besides that I’ll do about a mile with Wilfred 2-3 times a day. Long walk days usually mean steadier blood sugars for the rest of the day.

I’m really hoping that the next 12 weeks fly by. Everybody says they do…

Slow and Steady Wins the Race

Between doctors appointments, prenatal classes, nursery prep, baby-registry building and keeping my blood sugar between 70 and 130, I haven’t had much time for anything else. I’m ashamed to say that my kitchen floor hasn’t seen the broom in weeks. It’ll all get easier once the baby gets here, right? Right?? RIGHT?!?

I still can’t exercise. Even if I had the time too I can’t. I had hoped that once my a1c got better, (as of last week I’m at a 6!!!) I would get the all-clear to ease back into my active lifestyle. I’m not talking running marathons or any races for that matter. All I really wanted to do was a short, easy hike with a few friends, but I was denied.  Endo said that she has no idea what any kind of exercise will do to my blood sugars. I’m already insulin resistant and she doesn’t want me to attempt mixing exercise in. I argued that exercise increases insulin sensitivity. She said, nice try. I need to be consistent and eliminate as many variables as I possibly can. So it looks like I’m going to be stuck walking for at least 4 more months.

With my limited schedule I can still get a good walk in, and I absolutely do. A couple times a week I plan a long, (about 1.5 hours, usually over 3 miles) hilly walk with Wilfred. I’ve noticed that when I do this, that whole day and the next, my blood sugars are near perfect. I’m sure it also helps that I’m eating clean foods, because why would I want to ruin the only workout I can manage. I do a long walk to and around a local park.  It’s about 2 miles away. I also drive to the beach and walk the Santa Monica Bluffs with a friend. We start on a walking path, cut down to the beach, back along the sand and then finish with some killer stairs. Sand, sun and crashing waves to start my day.

So for now it looks like my hiking shoes will be collecting dust and my bike will stay tucked away under its bike cover. At least Wilfred is getting plenty of fresh air and sunshine. September can’t come soon enough!

A Day in the Life of a Pregnant Type 1 Diabetic

After reading about all the things that can go wrong in pregnancy if you have Type 1 Diabetes, I consider myself to be very lucky. I love being pregnant. Fortunately, I haven’t dealt with any complications and besides unbelievable exhaustion, my pregnancy side affects have been fairly minimal. At the same time, I can’t wait for this to be over. I know that I have years of worrying ahead of me, but I want to be able to eat a burger with fries and not worry how it will affect the baby or panic every time my blood sugar goes over 150.

Here is a glimpse of what I have to do and what I have to worry about every single day. It never ends, even while I’m sleeping (I’ve heard similar things about parenthood…).

  • wake-up at least 2x a night to check my blood usually at 12 and 3
    • sometimes I need a snack
    • sometimes I need insulin
  • check my blood before breakfast and calibrate my CGM
  • weigh food, calculate carbs, bolus (the foods I can eat and that don’t spike my sugars change all the time)
    • If blood sugar is over 100- wait at least 20 minutes to eat
    • If blood sugar is between 70 and 100- wait 5 minutes to eat
  • check blood 2 hours later, if high- correct or set temp basal
  • exercise fluctuates my sugars too much, but I can walk my dog; check blood first
    • too low- eat a snack, set lower temp basal and always carry snacks with me
    • too high- correct and wait until it’s below 140
      • depending on length of walk possible temp basal will be needed, snack definitely needed
  • check blood before snack; weigh, calculate, bolus and wait
  • check 2 hours later, correct if needed
  • if possible, take a nap (I’ve never felt this tired before)
  • drink at least 60 oz. water daily
  • pee 100x a day
  • check blood before lunch; weigh, calculate, bolus and wait
  • check 2 hours later, correct if needed
  • go to weekly doctors appointment at either endocrinologist, obstetrician/MFM, nutritionist, certified diabetes educator, or retinal specialist as well as occasional dentist and  chiropractor– frequency of appointments will increase once I reach the third trimester
  • check blood before snack; weigh, calculate, bolus and wait
  • check blood 2 hours later, correct if needed
  • walk dog; check, correct, wait
  • check blood before dinner; weigh, calculate, bolus, wait
  • check blood 2 hours later, correct if needed
  • make sure I’ve had at least 100g carbs, eat third snack if not
  • plan meals for the next day (makes calculating much much easier)
  • check blood before bed and calibrate CGM

 

I have learned a lot in the 5 months I’ve been pregnant. I can have everything figured out perfectly with my basal rates, carb ratios, sensitivity, and the foods I can eat , and the next day it all changes and I’m running super low, swinging hi-low all day or I cant bring my sugar down within range no matter how many times I try to fix it. Even with a CGM, I need to check my blood at least 10x a day with finger sticks- before pregnancy I was testing maybe 3x a day and relying heavily on my dexcom, that’s too risky now. Planning my day out makes blood sugar management way easier. And finally, while I try really hard to maintain a structured schedule, life happens and I need to be flexible. 21 weeks down, 19 to go!

Imagine walking a barbed wire tightrope, barefoot, over a zombie-shark infested lava field. That’s what pregnancy with Type 1 Diabetes is like.

 

Halfway There

I’m 5 months pregnant as of tomorrow and so excited to meet our little guy. We did the Harmony blood test at 2.5 months which checks for chromosome issues and tells us with 100% accuracy what the sex is. We know for certain that we are having a boy- so it looks like I will be completely outnumbered.

As far as balancing pregnancy with my diabetes, every day is a challenge. There is so much that has to go into my daily and weekly meal plan and exercise routine. The easiest thing by far has been sticking to a structured schedule. And I say structured very loosely. I don’t eat at the exact same time everyday (although I definitely try to!), but I do eat the same, or similar, foods everyday and stick to things I know work for me. Most of the time I spike when I eat something I probably shouldn’t have, when I miscalculate my carbs, or when I don’t allow enough time for the insulin to start working. The challenge is that those things are always changing. My insulin needs are always changing. My hormones are always changing. So as hard as I try to keep things the same, it’s a losing battle. I just do the best I can every single day and check in with my team of doctors (Endocrinologist, Diabetes Educator, Nutritionist, Obstetrician, Ophthalmologist) a few times a week.

I remember reading an article many years ago about a woman who was a type 1 diabetic and had 3 kids. She had her endocrinologist live with her during her pregnancies and manage her diabetes for her.  She didn’t have the same technology I have today-an insulin pump, a continuous blood glucose monitor (CGM), or data sharing websites (Carelink and Blip).  I think a big reason she didn’t have any complications is because her endo was right there, doing and calculating everything. While plenty of women with type 1 had children before any of the modern medical advances I’m fortunate enough to use became available, it really felt like the only way to do it successfully was the way she did. I had been told many times growing up that I wouldn’t be able to have kids and just accepted that it wouldn’t happen for me.  So the fact that I’m halfway through my pregnancy and am able to deal with the day to day challenges that come with it is a miracle.

Big Things for 2016

We are already in March. I feel like just yesterday I was celebrating the holidays with my family and ringing in the new year! Big news for the Keller family for 2016…I’m pregnant!!! It was a bit unexpected in that we definitely wanted and talked about having kids, it just happened sooner than we thought/anticipated/were really ready for. I know that no matter how much planning you do, you will never be fully ready for kids, which is why we are facing this new chapter of our family head-on. Diabetes or not, I’m going to do everything I can to ensure a successful pregnancy and a happy and healthy baby!

I officially found out I was pregnant January 6th. Before even telling hubby, I emailed my endo and CDE. While waiting for their response I started jumping up and down, dry heaving, shaking, grinning and worrying and tried to figure out the best way to tell Sean. My endo was a little less enthusiastic than I was. My a1c was not in pre-pregnancy, let alone pregnancy range. She said that my blood sugars couldn’t go over 140.  It was at that point that I started thinking I was in over my head. I got really sick New Years Day and because my sugars were so high during the holidays she was worried about what damage I had already caused for baby. That brought me down to reality fast. I made an appointment with her top choice high risk OB for the very next week. I also made an appointment with her for the next week (for the near future I would have to see her once a week until we brought my blood sugars back into range).

Telling hubby the news didn’t really go as I had planned. I was too excited and couldn’t wait to share the news. I had originally wanted to get some kind of infant dodgers memorabilia and wrap it along with the (sterilized) pregnancy test, but I couldn’t find anything that worked. I would have had to order something online and I couldn’t sit on this news for a week. I’m not good at keeping secrets. So I drove to his work and told him right before he finished for the night. He was very excited and happy, but like me surprised and worried.

Since January 6th I have learned that my baby has an amazing heartbeat and while we didn’t get a chance to record it (we’ll be doing that next time!), it’s not difficult for me to remember that beautiful sound. His/Her due date is September 19th and I’m going to do everything in my power to carry to term– I have heard/read horror stories about type 1 mom’s who had to delivery early for one complication or another. I don’t like the sad stories, but it’s important for me to know the risks and work with my amazing team of doctors to prevent anything bad from happening to baby and me. I learned that every pregnancy is different especially if you’re a type 1 diabetic. I’ve learned that I am very strong and that I can absolutely get my blood sugars under control. My endo is amazed at how well I’ve turned my numbers around. By the end of the second month I was able to go back to monthly appointments, however, I still send her my pump and CGM data every 3 days.

I have developed a rhythm to my Diabetes management. A great amount of work and energy and thought goes into what I’m eating, when I’m eating and what I’ll be doing after I eat. I will say that this is the hardest thing I have done and probably will ever do. As of last week I brought my a1c from a flat 8 to 6.8.  I finally beat my goal of getting my a1c to 7.  Who knew it just took pregnancy to do it?

Wrapping it up

I can’t remember the last time I sat down to write a blog post. I feel terrible about it. With a new dog/ dog training, and the holidays, plus my non-stop job search, it appears I’ve put my blog on the back burner. One thing I haven’t done is put my diabetes on the back burner. We are almost halfway through December and the last time I checked my a1c I was down to 7.7. I’m still not at my goal, but I’m so close I have no doubt that I’ll reach it! I don’t check my a1c this month. I will need to wait until January’s appointment but hopefully it will be even better. 

I worry that it either hasn’t moved or its gone up a bit because I’ve been incredibly stressed the last couple months. Searching for a job is hard work. Fine tuning your resume and writing brilliant covers letters is not an easy task. And it takes a lot of work! I met with Donna Miller, the amazing RN/CDE/lifesaver at my endo’s office and she made me feel a lot better. I need to take care of myself now because when I do find that amazing new job I need to already have a working routine for my diabetes. 

I’ve learned that bolusing 15-30 minutes before eating really helps. Sound advice that my endo has told me repeatedly but I’m just now listening to. I’m beginning to notice a pattern. It’s tough when I’m starving or when I don’t know what I’m eating right away. But most of the time I can handle waiting a bit before chowing down.

The second thing I’m focusing on now is pretty much what I always focus on. Making the right choices with what I eat. During the holidays that’s easier said than done. I allow myself a little bit extra on Thanksgiving or Christmas because for the most part, I’m really careful every other day. I’m still eating low carb and low glycemic foods. However, I haven’t used my cookbook hardly at all. Hoping to change that before 2015 comes to a close, but even if I don’t, I can always just make that my 2016 New Years resolution!

And now for the obligatory dog photo…

  
That was after a 5 mile run. Knocked out!

Fine tooth comb

The past couple years have been an incredible journey. I can’t believe how much I’ve grown as a person since I started taking back control of my diabetes and bringing down my a1c. At my last endo appointment my a1c was 7.9. I’m almost there. My goal is to get to 7 and I’m less than a full percentage away!! Once I’m closer to 6, kids might even be a possibility!

I can’t even believe I survived for so long in denial. I say survived because lets be honest, I wasnt living. I was barely surviving. I think about my self-destructive behaviors and I cringe. Days without checking my blood, NEVER bolusing!!!!, running out of insulin and waiting until the next day or two to change my pump, eating absolute crap every single day. It’s a miracle I’m still alive.

I meet people all the time who struggle day in and day out like I do. We understand eachother and support eachother and have the ability to share tips and advice. I’ve had this disease for over 20 years, but I learn something new all the time!

I’m very fortunate that my dad understands exactly what I’m dealing with. I wouldn’t wish t1d (or t2d) on anyone, but it helps that someone close to me knows the struggle. Everywhere I’ve been with my diabetes, he’s been there too. His a1c is right around 7.5-8, just like me, so we have a friendly competition to see who can get to 7 first!

One thing I just started doing is training Wilfred to be a diabetic alert dog. He’s with me all the time anyway, I figure I might as well make him useful! Haha. It’s a long process, tons of work and I’ve been doing loads of research, but I think I can do it. Hopefully if I’m successful I can help other people train their dogs too. D.A.D’s are so expensive, I’d love to be able to help make service dogs for diabetics a little more accessible.

While I train Wilfred, I’m also working on eliminating as many variables as I can in my day to day life. More consistency equals tighter control. If it means my numbers will be better, then I’ll eat the same thing each day (or series of things) for breakfast and lunch. I will exercise for the same amount of time, at the same time each day and try my hardest to get the same amount of sleep each night. All that, in addition to my doctor monitoring my pump settings, is sure to bring me to my goal!

Now, for the weekly dog pic 🙂

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Structure, schedules, planning

I learned fairly quickly that one of the best ways to maintain normal blood sugars is to have a structured schedule and stick to it. Fortunately my job is such that I can have a regular breakfast around the same time everyday, low carb snacks throughout the day, my shakeology for lunch and then I’m done and home in time to make a healthy dinner. But the summer has been really busy for me and this past month has turned my schedule upside down and inside out. I haven’t been able to make shakeology for almost 3 weeks and that one thing completely threw my blood sugars off. With more hours, I’ve been more stressed and that also throws my blood sugars off. They’re not as bad as they used to be, but I’m spending more time in the high 100’s, low 200’s than I’d like. At least when I do go over 300, I don’t stay there as long. This week my schedule is back to normal and should be for a while. I’m going to work on bringing my numbers back down. Thankfully I’m still a couple months away from checking my a1c, so I have time to ‘fix’ it. It’s still frustrating though. My doctor was so happy during my last appointment, and I know she’s not going to be mad at me for having a crazy schedule and working non-stop, but I’m mad at me for not being able to juggle everything.

My new puppy Wilfred definitely helps keep me in check. One look at that scruffy face and I feel so much better.

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I promise I won’t post pictures of my dog every blog post. He definitely keeps me moving though! On days that I’m feeling super bummed because my blood sugars have been high, or my sensor is being wacky all I wanna do is sleep (or hide) under the covers and watch terrible movies and eat popcorn. But Wilfred depends on me to exercise him, train him, feed him and love him. I may have rescued him, but he’s also rescued me–pretty sure I saw that on a bumper sticker somewhere but for now I’ll claim it as my own!

So for now I’ll fake positivity, I’ll get back into my routine (my mom is visiting for a few weeks so that should be pretty easy!), and I’ll bring my numbers down!

Calm-Assertive

The past month has been nothing but a love fest at my house. Our new puppy Wilfred has added so much to our lives. Besides the obvious stress relief, Wilfred gets my husband and I walking at least 2 hours a day, usually more. He is such a happy, playful dog. He follows me around like a shadow (which I’m not ashamed to admit- I love!). I can’t help but smile when I look at his goofy face! My husband, never a dog person, has completely changed his ways. 

I’ve been reading Cesar Millan’s book, Cesar’s Way, and one of the main points he starts on is that as the pack leader, dog owners need to be Calm-Assertive all the time. Just seeing all the examples and reading about the benefits to behaving this way got me to change my perspective. As a generally tightly wound person, I’ve been trying to stay calm and relaxed but still in control all the time. Of course I still get excited and laugh loud and talk a lot when friends come over, but I’ve noticed a change in myself and in my interactions with Wilfred.

Even taking Wilfred for a walk has changed my perspective. I love to exercise, but now when I take walks, it’s not just to get from point a to point b. I don’t turn around and come back inside once Wilfred has taken care of business. We keep going! It’s completely about the journey. We are living in the moment.

This has helped my attitude towards my diabetes as well. I’ve always hated changing my pump for no real reason except that I hate doing it. It literally takes 3 minutes and is very easy to do, but I dread it just the same. I’ve noticed that the last few times I’ve had to change my pump, I’ve been pretty neutral about it. I ordered an extra pump inserter and enlite sensor inserter so I don’t have to take anything out of my mobile diabetes kit. That stays in my purse. I organized my supply ‘station’ (one of those plastic, dorm room, drawer sets filled with infusion sets, reservoirs, sensors, test strips, lancets, syringes, alcohol wipes, tegaderm, batteries, an extra meter and adhesive pads) so that everything is be easily accessible and stored in order by expiration date. It doesn’t make changing my pump or sensor fun, but it is way less of a pain than it used to be.

I also noticed that I’m not as angry when I get highs as I used to be. I’d get so frustrated and feel an awful knot in my stomach anytime my meter read something over 250. It’s still frustrating, but I know that it’s going to happen. Instead of getting mad, I go into repair mode and fix it. I give a correction, if that doesn’t work, I check my site, change my pump and correct again. I should probably inject though instead of correcting on my pump. That’s probably what Doc. Peters would tell me to do. I’m taking baby steps. I’ll get there.

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